Background

Monday, October 13, 2014

Humbled

Over the last month I have had several friends and family suggest that I try and meet with others that might have epilepsy.  I found a group several weeks back and Ryan and I met with an epilepsy support group last Thursday.  I felt so at home with these other individuals who were experiencing some of the same symptoms as me.

I sat listening to the other families and became extremely humbled.  My seizures have been nasty and I'm scared, because I never know when one will happen, but nothing compared to what I heard that evening (fortunately Ryan was sitting next to me, because I kept gripping his hand). There was one woman whose five year old son has experienced over 30,000 seizures.  One young lady has one seizure per day and an absence seizure every 20 seconds.  There was an 18 month old, who was diagnosed with epilepsy at 10 days old, and is unable to hold his head up.

I never realized there were so many various types of epilepsy:
Temporal Lobe
Frontal Lobe
Parietal Lobe
Occipital Lobe
Primary Generalized
Idiopathic Partial 
Symptomatic Generalized
Progressive Myoclonic
Reflex
Febrile
Benign Rolandic
Juvenile Myclonic
Lennox-Gastaut Syndrome
Benign Occiptal
Maitochondrial Disorder
Landau-Kleffner Syndrome
Rasmussen Syndrome
Hypothalamic Hamartoma

Here is a link if you would like to learn more:  http://www.epilepsy.com/learn/types-seizures

No comments:

Post a Comment